Williams Syndrome Clinics
Williams syndrome clinics are "specialty" clinics often located in children's hospitals. They are established to provide a place where parent's can bring their children to see specialists with an excellent knowledge of Williams syndrome. It is not essential to bring your child to a WS clinic but it can be very helpful.
WS clinics can provide medical evaluations by several different specialists during a single 1 - 2 day visit, as well as evaluations by therapists that can often be used to help access services for your child locally.There are several Williams syndrome clinics around the United States. Clinic offerings vary. It's important to call and find out exactly what services the clinic nearest you can provide.
If you can, get a referral from your physician to the clinic you would like to visit. This will help you obtain insurance coverage for the visit.
The current Williams syndrome clinics are:
| California | Massachusetts | New York |
|
Salk Institute Lab for Cognitive Neuroscience La Jolla, CA 92037 Yvonne Searcy, Coordinator (858) 453-4100 x1416 Toll-free 800-434-1038 searcy@salk.edu |
Mass General Hospital 55 Fruit St. Boston, MA 02114 Dr. Barbara Pober Sandy (617) 726-1561 |
Children's Hospital of Buffalo 219 Bryant St. Buffalo, NY 14222 Dr. Laurie Sadler (716) 878-7530 |
| Florida | ||
|
All Children’s Hospital Johns Hopkins Medicine 501 6th Avenue South St. Petersburg, FL 33701 Debbie Reinthaler (727) 767-6483 deborah.reinthaler@allkids.org |
Helping Children with Challenges 21 Worthen Road, Suite 2 Lexington, MA 02421 Dr. Karen Levine (781) 799-4348 karen@DrKarenLevine.com website |
Children's Hospital of Montifiore Center for Congenital Disorders 3415 Bainbridge Ave. Bronx, NY 10467 Dr. Robert Marion (718) 741-2323 |
| Pennsylvania | Utah | |
|
Children's Hospital of Philadelphia 34th St. & Civic Center Blvd. Philadelphia, PA 19104 Daria Tolentino (215) 590-3376 (After call is connected, you will choose option #3, then option #2) |
The Children's Hospital, Boston 300 Longwood Ave. Boston, MA 02115 Liz Bain (617) 355-5429 |
Primary Children's Medical Center Adult Congenital Heart Disease Clinic 100 North Mario Capecchi Dr. Salt Lake City, UT 84113 Angela Yetman, MD Nancy M. Veit (801) 662-5462 CARDIOLOGY ONLY |
| Ohio | Arkansas | Missouri |
|
Nationwide Children's Hospital Nisonger Center McCampbell Hall 1581 Dodd Drive Columbus, OH 43210 Dr. Marilee Martens To make an appointment for the WS Clinic, please contact Andrea Subler, MSW, LSW, in Developmental and Behavioral Pediatrics at Nationwide Children's Hospital at: (614) 722-4050. |
The Multidisciplinary Connective Tissue Clinic at Arkansas Children's Hospital 1 Children's Way, Mail Slot 512-3 Arkansas Children's Hospital Little Rock, AR 72202 Director: R. Thomas Collins, II, MD Clinic Coordinator: Beth Martin, RN Appointments: (501) 364-2088
|
St. Louis Children's Hospital Williams Syndrome Center One Children's Place St. Louis, MO 63110 Director: Beth Kozel, MD (314) 454-6093 (choice 2 after the prompt) website |
For additional questions about Williams syndrome clinics, please contact the WSA office here.
