The Williams Syndrome Association is organized into 19 regions across the United States. Rhode Island is part of the New England region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers.
Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).
Contact the WSA national office to be connected with local support.
If you live in this state and would like to provide support to families in your area, please contact familysupport@williams-syndrome.org.
Project WellCAST is a NIH-funded clinical trial that aims to support caregiver well-being through supportive therapy, resources, and family friendly treatment!
