Dear Family & Friends,It is hard to believe that spring is almost upon us and the second annual Wayne Walk for Williams Syndrome is right around the corner. Even harder to believe is that our son Jackson will turn five years old this fall. It seems like just yesterday that we received his diagnosis, our heads swimming with questions, wondering what the future would bring for our family and our little boy. Since that day, Jackson has worked so hard to achieve his goals and to develop the skills and abilities that come naturally to most children but can be a huge challenge for him and other kids living with Williams Syndrome.
Jackson has made tremendous strides since the beautiful day last spring when we all gathered to walk in support of the Williams Syndrome Association (WSA). After four years of speech and language therapy, Jackson is talking up a storm and singing from morning to night. This past summer he rode his tricycle all by himself for the first time and he is climbing up and down the stairs independently. He is doing so well at school and is now taking the first steps towards spelling and reading. Jackson has so many things to be proud of, but without the help and love of so many people in Jackson’s life, we can’t help but wonder where Jackson would be without a home base of support.
Despite the joys that come with raising a child with Williams Syndrome, we know all too well what a daunting task this can be for our kids and the parents and families who love them. Daily therapies for physical, occupational, language and social skills, to name a few, are just a sample of the hard work that make up a typical day for Jackson and and other kids like Jackson. The dedication and support of parents, family, therapists, doctors and caregivers, coupled with the determination and amazing spirit of our kids, are what make this process a success.
For the majority of families living with Williams Syndrome, the first helping hand and voice of support following their child's diagnosis comes from the WSA. The WSA was and continues to be a key resource for our family as we navigate the complexities of Jackson’s development. From the indispensable medical and developmental information found on their website, to the WSA's amazing national and regional conferences, to camps, trips and social events for the kids, the WSA gives so much to individuals with Williams Syndrome and the families that love them.
The funds raised by this Walk will go directly to the WSA and their amazing work to educate, enlighten, and support the Williams Syndrome community. Across the country kids like Jackson and their families rely on the WSA in countless ways as they work to meet the challenges of life with Williams Syndrome. Jackson works hard every day to achieve his goals. It’s a wonderful feeling to know that the people of the WSA are working just as hard to support him.
He is an amazing little boy. Here is a glimpse into Jackson’s past year: Jackson’s Story 2015
We hope you can join us on Sunday, May 17th!
Love, The Knox Family (Brandon, Jenny, Jackson & Everly)