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TEAM ADELAIDE

Friends,

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As many of you know, our daughter Adelaide was diagnosed at 4 months with Williams Syndrome. Last May we attended the first annual WAYNE (PA) WALK FOR WILLIAMS and we were absolutely overwhelmed with the outpouring of support from our family and friends, old and new, near and far. May is WILLIAMS SYNDROME AWARENESS MONTH and once again we are planning on walking as #TEAMADELAIDE to spread the word about what Williams Syndrome is, and raise money for the Williams Syndrome Association (WSA), which has been an invaluable resource to us over the last 17 months. Last year we quintupled our initial goal and raised over $2500!!! The money raised helps the WSA put on programs for those with Williams Syndrome, helps less fortunate families with their medical expenses, provides funding for Williams Syndrome research, and helps to raises awareness.

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Williams Syndrome is a rare genetic condition, present at birth, caused by a random deletion of ~25 genes on the long arm of chromosome 7. It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning disabilities. These occur side by side with striking verbal abilities, highly social personalities and an affinity for music. WS affects 1 in 10,000 people worldwide – an estimated 20,000 to 30,000 people in the United States. (By contrast, Downs Syndrome affects about 1 in 800). It is known to occur equally in both males and females and in every culture. (For more information, visit http://www.williams-syndrome.org/ws)

The most important thing is that Adelaide is HEALTHY and HAPPY! She doesn't have the cardiovascular problems commonly associated with WS. She is thriving with her Physical, Occupational, and Speech Therapies. At 21 months, Adelaide is starting to take her first steps, feeding herself, and loves imitating her big sister (Words, Sneezes, Coughs, etc.). She has found her own voice, loves to shimmy to music whenever she hears it and thinks Tessa is the best comedian in the world. She lights up every room with her smiles – seriously – every room.

This year’s walk is taking place on Sunday, May 17th - once again at Wilson Farm Park in Wayne, PA. (Registration and welcome begin at 9am with a 10am Walk) #TEAMADELAIDE would love to have you join us for a fun morning walk as well as food, live music, travelling zoo, bounce house, face painting , and more!

Below is the link to #TEAMADELAIDE's support page where you can register to walk or make a donation to the WSA. Each donation counts as a walk registration, no matter the amount, so if you plan on walking (PLEASE DO!), please email Lisa (lisa.a.fusco@gmail.com) with your shirt sizes prior to APRIL 25! T-shirts will be distributed by the WSA at the Walk.

Shirt Sizes:

Youth: X-Small, Small, Medium, Large

Adult: Small, Medium, Large, XLarge, 2XLarge, 3XLarge

THANK YOU SO MUCH!

John, Lisa, Tessa & Adelaide

Goal $ 1,500.00
100% towards our goal
$ 3,000.00 raised
HONOR ROLL
The Fusco Family
$ 100.00
Lou And Janet Marchese
$ 250.00
To John and Lisa. You were always an amazing young man filled with compassion and love and acceptance. Lisa.... All we can say is "You Rock! The girls are amazing and we are happy to help! Wish we could be there. Thanks for all you do!
The Traynor Family
$ 25.00
Go Team Adelaide. Sorry we can't join you for the walk.
Bill And Maureen
$ 25.00
Go Team Adelaide! We will be walking with you in spirit that day.
Allyson And Vinny
$ 100.00
We love our girl!!!
Anonymous
$ 75.00
Regruto Family
$ 75.00
GO TEAM ADELAIDE!!!
Grandma & Grandpa
$ 100.00
Go Adelaide We Love You
Anonymous
$ 50.00
David
$ 100.00
Love you all!
Anonymous
$ 100.00
Stephen J Parlow
$ 20.00
Adelaide, may the joy of the Lord continue to shine wonderfully through your smile. We are so proud to support you and your family.
Jen OBrien
$ 50.00
Can't wait to walk with everyone! GO ADELAIDE!!!!
The Bergman Family
$ 100.00
Cheyanne L
$ 100.00
God Bless this Beautiful family and sweet little Adelaide! It was a blessing meeting you all last week as both of your daughters truly have angelic spirits! What an awesome family!!!
Anonymous
$ 50.00
The Daley Family
$ 100.00
GO TEAM FUSCO FAMILY!!!! You are great friends and have an amazing family; we are so glad to help support an association that has helped your family.
Byrnes Family
$ 100.00
Go Team Adelaide!
Volz Family
$ 50.00
We are going to be on vacation so we can't walk with you guys, but we hope it goes well!! Love you all! Go Adelaide!!
Karen And Joe
$ 50.00
Can't wait to walk with and for Team Adelaide!
The Moist Family
$ 50.00
The Watkins
$ 50.00
KJ and I can't wait to walk with you guys...Go Team Adelaide!!!!
Ellen O'C
$ 50.00
What a beautiful family! Have a great walk!
Nonni & Papa
$ 100.00
We're so proud of you Adelaide....and you mom, dad, and sister , too.
Everett (Kory) & AviElle
$ 100.00
Mr. Jim & Ms. Alice, So sorry we won't be able to walk with you guys. We'll be in Maryland that weekend or else we'd be there. We are honored to support you and your wonderful family! Love you guys!!! Go #TEAMADELAIDE!!
Anonymous
$ 100.00
Dan, Steph, Harry & Sam
$ 100.00
Wish we could be there to walk with you. Love y'all!
The DeMaio Family
$ 75.00
Tim & Lisa Doherty
$ 100.00
The Doughty Family
$ 50.00
Proud to support one of the sweetest little girls we know!
Teachers At GCA
$ 75.00
Go Adelaide...love the teachers at Good Counsel H.S.
Anonymous
$ 25.00
Jo & Tim
$ 75.00
We love you Adelaide!! Would walk around the world for you. Can't wait to see you Sunday.
The Rappleyea Family
$ 100.00
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