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Other non-WSA resources and international resources

There are many resources on the internet that contain useful information relevant to Williams syndrome or related topics.

Hundreds of sites contain information pertinent to individuals with Williams syndrome. While we cannot list every site, the list provided here is a good starting point for further research in the appropriate areas.

NOTE: Sites that have direct relevance to the treatment or support of individuals with Williams syndrome were referenced in the appropriate places throughout our website and are not duplicated here.

Sites are categorized as:

 

 

Other US Williams syndrome organizations [back to top]

  • Berkshire Hills Music Academy 
    The BHMA is a post-secondary/transition program established to provide comprehensive training in music, essential academics, social, vocational, and independent living skills. Find information on the BHMA here.

  

Support and advocacy organizations and resources [back to top]

  • The ARC
    The Arc is the national organization of and for people with intellectual and developmental disabilities and their families.
     
  • American Music Therapy Association
    The mission of the American Music Therapy Association is to advance public awareness of the benefits of music therapy and increase access to quality music therapy services in a rapidly changing world.
     
  • Wright's Law
    Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about advocacy for children with disabilities.
     
  • The National Organization for Rare Disorders - NORD
    NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
     
  • Genetic/Rare conditions - national resources 
    Organizations, support groups and information on genetic and rare conditions.
     
  • Family Village Home Page 
    This site also contains a Williams syndrome discussion board. Go to the discussion board here.

  

Special educational organizations and resources [back to top]

  • US Department of Education - My Child's Special Needs 
    The US Department of Education (My Child's Special Needs section) provides links to Guides to the IEP Program, Family & Advocates Partnership for Education, Disability Discrimination information, and much more.
  • US DoE - Office of Special Education and Rehabilitative Services 
    The Office of Special Education and Rehabilitative Services (OSERS) is committed to improving results and outcomes for people with disabilities of all ages.
  • TASH - Equity, Diversity, Social Justice and Inclusion 
    TASH is an international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm.
  • Family and Advocates Partnership (FAPE)
    The FAPE project is a partnership that aims to improve the educational outcomes for children with disabilities.
     
  • Council for Exceptional Children
    The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.
     
  • Institute of Community Integration
    Working to improve the community services and social supports available to individuals with developmental and other disabilities, and their families.
     
  • Learning Disabilities Association 
    The Learning Disabilities Association of America is a national, non-profit organization committed to advancing the education and general welfare of children and adults of normal or potentially normal intelligence who manifest disabilities of a perceptual, conceptual, or coordinative nature.
     
  • Learning Disabilities Online 
    LD Online is a service of The Learning Project at WETA, Washington, D.C., in association with The Coordinated Campaign for Learning Disabilities.
     
  • Berkshire Hills Music Academy 
    The BHMA is a post-secondary/transition program established to provide comprehensive training in music, essential academics, social, vocational, and independent living skills. Find information on the BHMA here.
     
  • Inclusion Press

  

International Williams syndrome organizations [back to top]

  

Argentina

Australia

  • Williams Syndrome Association of South Australia Inc.
    PO Box 247
    Salisbury SA 5108
    Australia
    Tel: 08 8258 3867
    Email: amarob@chariot.net.au
  • Williams Syndrome (IHC) Association of New South Wales
    32 Selwyn Street
    Paddington
    New South Wales 2021
    Australia
    Tel: 02 9332 1361

Belgium

Brazil

Canada

Denmark

  • Williams Syndrome Association of Denmark
    V/gitte Petgersen Kildemarken 44
    4622 Havdrup
    Denmark

Finland

France

  • ASW Ile de France (Paris and suburb)
    BP 50
    78362 MONTESSON CEDEX 
    Tel: +33 (0) 1 39 52 06 75
  • ASW Normandie
    209 Rue du Commandant Abadie
    76600 LA HAVRE
    Tel: +33 (0)2 35 45 71 28
  • ASW Sud-Est (covering Lyon-Tolouse-Nice)
    16, rue Teresa Maxence Chaix
    13200 Aries
    France
    Tel: 04 90 85 18 99
    Email: helene.monti@wanadoo.fr

Germany

Hungary

  • Hernad u 27
    H-1078 Budapest
    Hungary
    Email: pogany@korb1.sote.hu
    Tel: 36 1 326 7492 (English/French speaking)
    Tel: 36 1 266 1639/2890 (English/Spanish speaking)

Ireland

Israel

  • Williams Syndrome of Israel
    Louis Pasteur 5
    Tel Aviv
    Jaffo
    68036
    Israel
    Tel: 03683 0538

Italy

  • Assocociazione Italiana Sindrome di Williams
    c/o Sovrano Militare Ordine di Malta
    Piazza dei Cavalieri di Malta 4
    00153 Roma
    Italy
    Tel/Fax: 06.574.1342
    Email: aisw.rm@mclink.it

Japan

Netherlands

New Zealand

Norway

  • Norsk Forening for WS
    Lisen Julie Mohr Norsk Forening for WS Bernhard Herresvel 17
    0376 Oslo
    Norway
    Email: lisen.mohr@frambu.no

Portugal

Slovac Republic

  • Spolocnost Williamsovho Sydrom
    MUDr. Vladimir Bzduch
    I.detska klinika DRNsPLimbova c.1
    833 40 bRATISLAVA-Kramare
    Slovenska Republika
    Email: v.bzduch@pobox.sk
     

South Africa

  • The WSASA
    Contact: Mike Kabat
    P O Box 24003
    Claremont 7735
    Republic of South Africa
    E-mail: kingscol@mweb.co.za

Spain

  • Asociación Síndrome Williams A.S.W.
    C/Las Fabricas 3
    Poligono Industrial Urtinsa
    CP 28925 Alcorcon
    Madrid
    Spain
    Tel: 91 486 0172
    Fax: 91 556 7780
    Email: elegary@teleline.es
  • Asociación Síndrome de Williams en Soria
    C/Sagunto 14 - 4B
    42001 Soria
    Spain
    Tel: 975 22 2167
    Fax: 975 22 5929
  • Asociación Valenciana Síndrome de Williams
    Plaza Alqueria Nova, 18, 49a,
    46014 Valencia
    Spain
    Tel: +34 963 83 3547
    Email: avsw@wanadoo.es

Sweden

Switzerland

  • Sous La Rochetta
    1566 St Aubin/Fr
    Switzerland
    Tel: (26) 677 17 17
    Email: meroni@bluewin.ch

United Kingdom