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New England

The Transition: Becoming an Adult with a Rare Disease

Event Date: 
2/27/15
Time of Event: 
1:00 PM - 4:00 PM
Location: 
Quinnipiac University
North Haven
CT
Contact: 
Dr. Pober: Barbara.Pober@quinnipiac.edu
Region: 

In recognition of World Rare Disease Day, The Frank H. Netter School of Medicine at Quinnipiac University will be hosting this event, and will feature Amanda Gainza, Brendan LeMieux & Ben Monkaba, who have Williams syndrome as panelists/performers.

Williston Walk for Williams

Event Date: 
5/23/15
Time of Event: 
10:00 AM
Location: 
Williston Community Park
Williston
VT
Contact: 
Mary Hill: 802-999-8568 or vermontwalk4williams@gmail.com
Region: 

Join us as we generate awareness about Williams syndrome and raise funding for critical WSA programs and initiatives.

If you would like to make a donation towards or register for this event, please click here

Derry Walk for Williams

Event Date: 
5/16/15
Time of Event: 
10:30 AM
Location: 
First Parish Congregational Church
East Derry
NH
Contact: 
Laura Spinney: 603-437-2310 or lspinney@williams-syndrome.org
Region: 

Join us as we generate awareness about Williams syndrome and raise funding for critical WSA programs and initiatives.

If you would like to make a donation towards or register for this event, please click here

New England Region Holiday Party

Event Date: 
12/7/14
Time of Event: 
2:00 PM
Location: 
Home of The Greene Family
Sudbury
MA
Contact: 
Meredith Greene: mhgreene1x@verizon.net
Region: 

Please bring a dish to share. I have 2 children with severe peanut and tree nut allergies and we do not allow any nuts in the house so please leave those dishes at home.

Please bring a wrapped gift from Santa for your child ($15 value)

RSVP to Meredith Greene at mhgreene1x@verizon.net

Burning Mouth Festival 2014

Event Date: 
9/27/14
Time of Event: 
11:00 AM - 6:00 PM
Location: 
The Green
Quechee
VT
Contact: 
Loreen Billings: lbillings@pcmanufacturing.com or 802-885-6208 ext 222

ImageTek Labels & The Chiligods have joined forces to bring you the 2nd Annual East Coast Burning Mouth Festival™! Originating in California, the festival has spread like wild fire and is headed this way!

• Live Music!
• Vermont Beer Garden featuring Fiddlehead Brewery!
• Over 50 area Specialty Food Producers and Vendors, ready to turn up the heat!
• Raffles, games and giveaways!

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