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New England

Weston's Lake House

Event Date: 
7/25/15
Time of Event: 
12:30 PM - 5:30 PM
Location: 
Weston's Lake House
Coventry
CT
Contact: 
Holly Weston: 860-428-5895 or hollymweston@charter.net
Region: 

You are invited to the Weston's Lake House!

What to bring: A dish to share, (We will have hamburgers, hot dogs and cold drinks.) bathing suit, water shoes or flip flops (a must for the lake) for swimming, our beach is rocky and very shallow. We do find glass now and then.

Please RSVP by July 23rd to Holly Weston

Rain Date: Sunday, July 26th

Dowload the event flyer below for more information and directions.

Team WSA: Falmouth Road Race

Event Date: 
8/16/15
Time of Event: 
Location: 
Falmouth High School Field House
Falmouth
MA
Contact: 
Jennifer O'Byrne: jobyrne@williams-syndrome.org or 800-806-1871
Region: 

Team WSA (Jillian Richard-Daniels, Laura Spinney, Nanci Walsh, and Jillian and Johnathon Nickerson) will be running the New Balance Falmouth Road Race in honor of their children, and all individuals with Williams syndrome. Their goal is to raise awareness about Williams syndrome (WS) and generate funding for the programs and initiatives supported by the Williams Syndrome Association.

To learn more about their goal, please click here.

Trampoline Park Fundraiser

Event Date: 
5/8/15
Time of Event: 
4:00 PM - 8:00 PM
Location: 
Launch Trampoline Park
Norwood
MA
Contact: 
Dawn Low: 508-577-2234 or dawn.m.low@gmail.com
Region: 
Bring your socks, your friends and be ready to bounce to benefit the WSA!
 
$15/hour admission to jump. 25% of all admissions paid with the accompanying flyer (download flyer below) will benefit the Williams Syndrome Association.
 
You must provide the flyer for the WSA to benefit from your admission.

The Transition: Becoming an Adult with a Rare Disease

Event Date: 
2/27/15
Time of Event: 
1:00 PM - 4:00 PM
Location: 
Quinnipiac University
North Haven
CT
Contact: 
Dr. Pober: Barbara.Pober@quinnipiac.edu
Region: 

In recognition of World Rare Disease Day, The Frank H. Netter School of Medicine at Quinnipiac University will be hosting this event, and will feature Amanda Gainza, Brendan LeMieux & Ben Monkaba, who have Williams syndrome as panelists/performers.

Williston Walk for Williams

Event Date: 
5/23/15
Time of Event: 
10:00 AM
Location: 
Williston Community Park
Williston
VT
Contact: 
Mary Hill: 802-999-8568 or vermontwalk4williams@gmail.com
Region: 

Join us as we generate awareness about Williams syndrome and raise funding for critical WSA programs and initiatives.

If you would like to make a donation towards or register for this event, please click here

Derry Walk for Williams

Event Date: 
5/16/15
Time of Event: 
10:30 AM
Location: 
First Parish Congregational Church
East Derry
NH
Contact: 
Laura Spinney: 603-437-2310 or lspinney@williams-syndrome.org
Region: 

Join us as we generate awareness about Williams syndrome and raise funding for critical WSA programs and initiatives.

If you would like to make a donation towards or register for this event, please click here

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