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Williams Syndrome Articles

Heart to Heart is published 3 to 4 times each year by the WSA. It contains the latest information on medical treatments and educational strategies written by professionals working with individuals with Williams syndrome and other specialists.  It also contains updates on the activities and programs of the WSA, and entries written by parents and individuals with Williams syndrome.

Reprints of the following articles, previously published in Heart to Heart are available from the WSA and can be ordered by contacting our office.

Article list

MEDICAL GENETICS/RESEARCH

EDUCATION

MUSIC EDUCATION

INFANTS AND YOUNG CHILDREN EDUCATION

SCHOOL AGE CHILDREN

TEENS AND ADULTS

RELEVANT TO ALL AGES

Research Notes from the Salk Institute for Biological Studies, Laboratory for Cognitive Neuroscience 

by: The Salk Institute for Biological Studies, Laboratory for Cognitive Neuroscience 
Heart to Heart issue: Dec. 1997 Vol. 14 #3 
Summary: An update of research at the Salk Institute, including studies of brain imaging, WS database and musical abilities in individuals with Williams syndrome.

    Latest information on the WS critical area 

    Drs. Barbara Pober and Lucy Osborne discuss the latest research developments in regard to the WS Critical area on chromosome #7

      Genetics and Williams syndrome 

      by: Kay Metcalf 
      Heart to Heart issue: May 1998 Vol. 15 #1 
      Summary: Basic review of human genetics and explanation of genetic deletion in WS

        The Preanesthetic Assessment of the Individual with Williams syndrome

        by: Dr. Lynn White 
        Heart to Heart issue: Dec. 1998 Vol. 15 #3 
        Summary: Written by the parent of a child with WS who is also an anesthesiologist. Guidelines for assessment of individuals with WS prior to undergoing anesthesia.

          Education Tips 

          by: Nancy Grejtak 
          Heart to Heart issue: Dec. 1997 Vol. 14 #3 
          Summary: Tips and resources to aid in handwriting and reading mastery for students with WS.

            How to Develop an IEP that Works 

            by: Maria Kerber 
            Heart to Heart issue: May 1998 Vol. 15 #1 
            Summary: Questions to consider in developing an IEP.

              The Parents Role in Developing the IEP 

              by: Ronald Hager, Neighborhood Legal Services 
              Heart to Heart issue: May 1998 Vol. 15 #1 
              Summary: An outline of a parent's role and rights in the development of their child's IEP.

                Special Education- Nine Rules of Thumb 

                by: Robert Crabtree 
                Heart to Heart issue: Dec. 1998 Vol. 15 #3 
                Summary: Reprinted from Newsline: The Federation for Children with Special Needs A nine step guide for parents to advocate successfully for their special needs children in order to obtain educational and related services.

                  Research Update: Musical Abilities in Individuals with Williams syndrome 

                  by: Daniel Levitan and Ursula Bellugi 
                  Heart to Heart issue: Dec. 1997 Vol. 14 #3 
                  Summary: A preliminary study of individuals with WS and musical ability, carried out at the Belvoir Terrace Music Camp in August, 1996

                    Floor Time: Intervention for Young Children with PDD: The Approach of Greenspan, NM and Serena Weider, Ph,D. 

                    by: Karen Levine Ph.D. and Rob Wharton MD. 
                    Heart to Heart issue: May 1998 Vol. 15 #1 
                    Summary: An overview of Dr. Greenspan's intensive approach to intervention. The authors have used "Floor Time" successfully with autistic children and are now using it in their work with children who have WS.

                      Learned Helplessness and School Failure 

                      by: Robert and Myrna Gordon 
                      Heart to Heart issue: Dec. 1997 Vol. 14 #3 
                      Summary: An explanation of learned failure as well as strategies to avoid this pitfall.

                        Record Keeping: A Sub-Specialty in Parenting Children with Special Needs 

                        by: Maria Kerber and Julie Siebold, Parent Network, Buffalo, NY 
                        Heart to Heart issue: May 1998 Vol. 15 #1 
                        Summary: Outlines tips on organizing school related paperwork effectively.

                          Social Skills Development 

                          by: Kathryn Kerpestein 
                          Heart to Heart issue: Dec. 1998 Vol. 15 #3 
                          Summary: A brief discussion of nonverbal communication and interpretation of nonverbal messages. Includes reference to a book on the subject "Helping the Chid Who Does Not Fit In" by Drs. Stephen Nowicki and Marshall P. Duke

                            Excess Weight: A Threat to Adults with WS 

                            by: Howard Lenhoff Ph.D. 
                            Heart to Heart issue: Dec. 1997 Vol. 14 #3 
                            Summary: Observations of weight-related issues in adults with WS and a chronicle of Howard's daughter Gloria and her impressive weight control regime.

                              Transition 

                              by: Jill Richards 
                              Heart to Heart issue: May, 1998 Vol. 15 #1 
                              Summary: Outlines the process of transitioning individuals from the school system to community based living.

                                The Sibling Supports Project 

                                by: Children's Hospital and Regional Medical Center 
                                Heart to Heart issue: May 1998 Vol. 15 #1 
                                Summary: A description of the "Sib shop" program which is geared toward brothers and sisters of individuals (with special needs) and their issues.

                                  Special Needs Trusts and Guardianship 

                                  by: Theresa Varnet
                                  WSA Regional Conference; Boston, MA 11/2009
                                  Summary: An explanation of this unique form of trust for individuals with special needs. It allows for additional support without compromising eligibility for State or Federal aid, and provides life long funding support for independent living options and other programs.

                                    Anxiety in Individuals with Williams syndrome; Model and Strategies

                                    by: Karen Levine Ph.D., Robert H. Wharton, MD., and Sara Miranda LICSW 
                                    Heart to Heart issue: Vol. 16 #1 March 1999 
                                    Summary: Anxieties in individuals with WS and several interventions are outlined

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