FAMILIES AND RESEARCHERS WORKING TOGETHER TO Find Answers
Thank you for your interest in joining the Registry! The goals of the WS Registry are to learn about Williams syndrome and make it easier to conduct research on Williams syndrome so better treatments can be developed more quickly. The Williams Syndrome Association (WSA) believes that connecting families and researchers through the WS Registry will lead to breakthroughs for patients everywhere.
To begin the short registration process, as a family member, click the link below.
- Click the “Family Registration” button above
- Read/accept the Consent/Authorization
- Choose a username and password
- Create an account
- Once you’ve joined, follow the prompts for surveys to add your family member’s health information/background.