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How Can I Help?

How Can I Help The WSA?

The Williams Syndrome Association is a small organization with a big mission. With only a handful of staff members, we rely heavily on our powerful network of volunteers. With your help, we can enrich the lives of more individuals with Williams syndrome, raise awareness, host more events and so much more.

There are numerous opportunities for volunteerism within the WSA. Whether you prefer to donate your time at childcare during a convention or host a fundraiser to raise money, we would love an extra set of hands! 

National Volunteers

To offer volunteer support at WSA events, including camps and national conventions, or if you are in the MI area and would like to lend a hand in the office, please call the 800-806-1871 or email Jennifer O'Byrne at

Regional and Local Area Volunteers

We rely on Regional Chairs in each of our 19 regions nationwide. They help disseminate information, represent the WSA, coordinate local events and more. To find out how to get involved or to find out who your local RC is, please click here to find your region and go to that page. 

Fundraising Volunteers

To find out more about hosting a fundraiser or to request a Volunteer Fundraising Manual, please contact Jennifer O'Byrne at

Goods & Services

As a small organization, we are always on the lookout for people with special talents or services that they can provide at no cost or at a discounted rate. The list includes public relations, graphic and web design, photography and more. When it comes to items needed, we are always on the lookout for musical instruments, toys and games for camp and childcare and more. For more information about what we currently need and how you can help, please call the National Office at 800-806-1871.

Board of Trustees and Committees

The WSA Board of Trustees sets the strategic vision and guides the association in its growth. Our current board is comprised of 14 adults (including 2 with Williams syndrome) from across the country.  The Board works to ensure that the WSA’s programs are aligned with its mission.  They also have the fiscal responsibility of budget oversight and a personal “give or get” policy for fundraising.  The WSA works hard to insure that Board is well-represented demographically, with members of differently aged children who live in various areas of the country, have different specialties and represent different cultures.  For a complete list of current board members click here

For more information about Board job descriptions or to find out about board member nominations, please contact the national office at 800-806-1871 or via email: