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Williams Syndrome Awareness Month


May is Williams Syndrome Awareness Month!

Hello, WSA community. Following the advice of medical professionals and government officials about large-gatherings, we have cancelled in-person awareness events for April and May. We invite you all to join our community in virtual awareness events and activities and, if the time is right for your family, to include a call to action to help us support the critical programs of the WSA. Details for our awareness activities are listed below. Thank you for your continued support. 


Awareness month activities

Join us for our virtual awareness activities! There will be weekly drawings for those who post pictures/videos and use our themes and our hashtags throughout the month of May for WSA swag prizes, but that is just an added benefit.  The real benefit to participation is in helping us increase awareness of Williams syndrome and have some fun doing it! Please make sure you follow us on Facebook and Instagram so you won't miss out! We will start out the weeks with an official "go" message, and below are the themes so you can get your creative juices flowing! 

Hint for  taking video from phones, please make sure you position the phone in a landscape position rather than a vertical one, to ensure full screen video. Using the hashtags will allow us to see and track them, but we may want to obtain the original videos of some of them, in which case, we'll ask you to email them.  


Week three: May 16

Our Week Three Challenge (May 17): Spread awareness in your community while showing off your family's creative flair! Decorate your yard, porch, sidewalk, front door, balcony, cookies, cakes, dances…or whatever comes to mind for Williams Syndrome Awareness. We know our community is SO creative--and some of you have already been creating (like Jax and his mom)! Post your photos, and/or videos of the project with the hashtags #wsawareness and #wsawarenesscreate and you'll be entered into our weekly drawing. Have fun and thanks for spreading awareness!

Regional Days

The WSA has 19 regions across the country, and each region is going to have a dedicated special day to show who they are and why they are awesome. We'd like our community to share some video of your daughter or son with WS, or someone close to them sharing a fact about WS and what makes them special, like Isaiah does below! For information on our regions and to join the Facebook groups for your region, visit this page. We may even have some special guests take over our Instagram, so please follow us there as well.  @williamssyndrome  For the schedule and hashtags, click here.

Isaiah from Texas Spreads Awareness! from Williams Syndrome Association on Vimeo.

Share Videos

May is a great month to share videos! Find them on our Youtube channel. 

Facebook Frames

Created by our friend Jessica Connor of Outshine Labels, these are a nice way to spread awareness through your profile pics in May! 


She also created themed message images to use when you're posting about Williams syndrome throughout the month--they're a great enhancement to your stories! 

The whole series can be viewed and downloaded here


Awareness Items

You asked and we listened! WSA eStore is re-imagined and re-opened!  

We have received many questions about obtaining WSA gear for awareness month and in general now that we are all working remotely and our online store is closed. 
With the help of our good friend and WS Awareness gear provider David Marsden at Advanced Embroidery, you can now order WSA gear directly from him and he will drop-ship right to your home. Awareness shirts and lawn signs ordered by April 19, will ship no later than May 1st.  Orders placed by April 30th will ship no later than mid-May.  
Check out the link for Awareness shirts and signs, other apparel, “old favorites” and some brand new offerings!



Thousands of people join the Williams Syndrome Association every year to raise awareness for Williams syndrome, a genetic condition that remains virtually unknown to the general public, educators and many doctors. For some shareable information cards, click here.

If you'd like to make a donation in honor of awareness month, please click here

Looking for a fun awareness coloring project? Download the hands and heart logo to color here, and the "I Love Someone with Williams Syndrome" one here. Display in your windows!

Our logo cannot be used for commerical purposes with our permission.