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The Registry - Researchers

Families and Researchers Working Together to Advance Understanding of Williams Syndrome

About the WS Registry

The WS Registry is developed for, and owned by, the WSA. It collects and organizes information that parents or legal guardians provide about their family member with Williams syndrome. It also connects persons with Williams syndrome and their families to doctors and scientists currently researching the condition.

Why Join?

Through the WS Registry, researchers can:

  • Peruse de-identified summaries derived from parent/guardian provided information about their family member with Williams syndrome
  • Request copies of, or information from, medical records that have been provided to the WS Registry
  • Work with the WS Registry staff to recruit potential study participants for your studies (these may be ongoing or conducted at a WSA convention)

Who Can Join?

The WS Registry is for researchers and doctors interested in studying Williams syndrome. All qualified researchers (doctors, sceintists, psychologists, developmental specialists, etc.) may join. 

Learn More

To read more about the Registry, click the link above.

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If you think you are interested in joining, get started here!

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