Matt Bartow is a technology executive and father to Rosie who is four years old and has Williams syndrome. As the Chief Technology Officer at Insitu, Inc. a subsidiary of The Boeing Company, Matt is responsible for advanced development and engineering for the enterprise’s portfolio of unmanned aircraft systems operating for a global set of defense and commercial customers. Matt is passionate about applying his engineering skills and business acumen to advancing the strategic goals of the WSA, advising on social media, leveraging technology/collaboration platforms and serving on the research committee. Matt and his wife Kelly, who has a PhD in biomedical engineering specializing in motor control and sensory integration (and is also interested in research!), live in Hood River, Oregon with their two daughters.
Cyndra Cole is a political and fundraising consultant. She teaches graduate-level courses in campaign finance and campaign management at the University of Akron. Cyndra served as the fundraising chair of the planning committees for the 2016 and 2018 WSA Conventions, and she created and hosts the Cleveland Walk for Williams. In addition to her role as vice president, Cyndra serves as the chair of the board’s development committee and is excited to help create a culture of philanthropy at the WSA. Cyndra earned her Masters of Applied Politics at the University of Akron. She and her husband, Randy, reside in Aurora, Ohio, with their five children. Their daughter, Eden, is a pre-teen with Williams syndrome.
Ryan Cordry DO is an orthopedic surgeon in Birmingham, AL and has been in private practice there for several years. He is originally from Missouri and completed his orthopedic surgical training in southern California. He currently serves on several hospital committees and is the Orthopedic Surgery Division Chairman for Princeton Baptist Medical Center. He and his wife, Sheetal, have three children, including their oldest, Eva, who was diagnosed with Williams Syndrome at 2 1/2 and is currently in elementary school. Ryan is most excited about collaborating with the rest of the research committee and the scientific advisory board to advance the understanding of Williams syndrome through the various areas of research supported by WSA, and working on the development committee to establish new and strengthen existing relationships to support the mission of the WSA. Ryan and his wife were deeply moved and inspired during their time at the Williams Syndrome Association conventions and they committed to put this inspiration into action for the association, drawing him to join the board of directors to lend his humble talents and support while his wife is also serving as regional co-chair of the Gulf Coast Region.
Judy Van Handel is a retired CPA and community volunteer for organizations that serve individuals with intellectual disabilities. She has held various volunteer roles within the WSA, including area representative in Southeastern Wisconsin, Regional Chair from 1999 to 2002, and chair of a WSA Regional Conference. Judy participates on the member support and finance committees, and will focus her efforts on opportunities for adults with WS. She and her husband Mike live in Milwaukee, WI. They have 2 young-adult children, Kristen (WS) and Nick. Kristen is a resident of Casa de Amma, an independent apartment community in southern California.
Clancey Hopper is 30-years-old has Williams syndrome. She lives independently in Nashville, Tennessee in her own apartment and she works as a tour guide for the Grand Ole Opry. She is an advocate dedicated to changing the perceptions of those people with developmental disabilities and currently serves on the Tennessee Council on Developmental Disabilities. She is honored and humbled by the opportunity to serve on the WSA Board of Trustees.
Jocelyn Krebs, Ph.D. is a Professor in the Department of Biological Sciences and the WWAMI School of Medicine at the University of Alaska Anchorage. Her research in the field of epigenetics led her to study one of the genes deleted in WS, and several years later she had a child with WS, and thus brings both a mother’s and a scientist’s perspective to the board. She has a passion for supporting high impact research and for helping make complex science understandable, and is a frequent convention speaker on the genetics of Williams syndrome. She lives in Portland Oregon with her wife Susannah and her sons Rhys (born 2009, WS) and Frey (born 2012).
Marty Levinson, MD, is a pediatrician in the Detroit area. Josh, the oldest of his four adult sons, has Williams syndrome. Dr. Marty has been involved with the WSA since its inception, is a long-time member of the WSA’s professional advisory board, and is a frequent speaker at
WSA conventions. He has recently started on a journey of “Grand Rounds” presentations on WS at medical centers around the country to increase awareness on Williams syndrome among clinicians. He is on the research committee and continues to consult on WS patients all over the world.
Maegan Miller, who is in 30-years-old and lives in Rhode Island, was diagnosed at two.
Following graduation from Tollgate High School in 2006, Maegan attended the Community College Of Rhode Island. She is a member of the board of directors for Special Olympics Rhode Island where her impressive resume of accomplishments includes being chosen to represent Special Olympics Rhode Island in Washington DC to lobby for funding for individuals with special needs; attending the Healthy Athlete Conference in Washington DC where she was one of twelve people chosen from across the USA to develop and implement a program for Individuals with special needs, to adopt a healthy lifestyle and make wise health choices; acting as the face of SORI for their 50th anniversary network TV commercial; and serving as a reporter for an all SO athlete run cable show. Magen has attended the WSA music and enrichment camp both as a camper and counselor in training.
Tara Momplaisir is a cardiology/electrophysiology nurse practitioner at Johns Hopkins Bayview Medical Center in Baltimore, MD. She specializes in the management of pacemakers and defibrillators, devices that help control patient heart beats. She has traveled internationally to teach nurses and other health care professionals some of these skills.
Most recently she traveled to Haiti with a medical team for week-long missions, during which dozens of orthopedic surgeries are performed for children. Tara and her husband Gerald live in Baltimore, MD. Their teenage daughter Pascale has Williams syndrome.
Melissa Murphy is a senior attorney in the Office of the Solicitor of the Department of Labor in Washington, DC, where she handles a range of federal appellate cases and policy matters. She routinely represents the department nationally at meetings, trainings, and conferences. Melissa is active within the disablility community around issues concerning family engagement and inclusion practices. A graduate of Temple University Institute on Disabilities’ Partners in Policymaking Program, she has served on the workgroup for the Early Learning Program Partnership Standards in Pennsylvania, as a parent co-chair of the Montgomery County Interagency Coordinating Council, and on the planning committee for the Family Engagement Summit in Pennsylvania. Melissa co-founded the Philadelphia Walk for Williams and has been on the WSA Board of Trustees since 2015, serving as its vice-president and president. Melissa lives outside of Philadelphia with her husband Ben, a pediatrician, daughter Rose (8, WS), son Charlie (6), and daughter Hope (1).
Scott Ottenheimer is the vice president, head of procurement at QBE North America, an integrated specialist insurer and part of QBE Insurance Group Limited, one of the one of the world's top 20 general insurance and reinsurance companies. With more than 10 years of experience in insurance and management consulting, Scott has utilized his data-driven approach and strategic sourcing methodologies to improve bottom-line efficiencies without impacting quality. As a management consultant, Scott has worked with both for-profit companies and nonprofits of all sizes to improve profitability and increase funds for research. Scott and his wife Jenna, who host the #Walk4Williams event in Chicago, have two young daughters, and their oldest has WS.
Griselda Polanco-Guzman, mom to 10-year-old Ariana who has Williams syndrome, resides in Paterson, NJ. She is currently studying for her RN and is expected to graduate in May 2021. For the WSA, she has served as a regional chair, helping families in the NYC Metro region, and is a member of our diversity committee. She is an advocate who has many connections and accomplishments in New Jersey: she graduated from the NJ Partners in Policymaking program, and is one of the founding members of the Paterson Public School's Special Parent Advisory Group (SEPAG). The group provides input to the local school district on system-level challenges in special education and related services, which represents the voices of 5,000 special education student in the city of Paterson. She also volunteers for the NJ Coalition for Inclusive Education (NJCIE), and is a board member on The Elizabeth Boggs Center Consumer Advisory Council.
Laurel Rossi, and her husband Joseph Filippone, have a teenage daughter, Mia, with Williams syndrome. She joined the board in 2014 with the hopes of being able to lend development, marketing and social media expertise to the organization. Laurel is the CMO at OMD--the largest media agency in the world, which allows her to work with the best companies around the globe. Laurel is also co-founder of Creative Spirit creative spirit-us.org, a nonprofit that matches adults with intellectual disabilities with jobs in corporations. Laurel's passion for mentoring young women in business and her strong belief that creativity provides equal career opportunities led Laurel to bring Creative Spirit to the U.S. with her partners in Australia. Laurel is on the development committee and has been the chair of the nominating committee for the past two years.