Our goal is to reach as many families affected by Williams syndrome as possible, and we're excited to offer a way for parents and caregivers to connect with experts conveniently online.
Once a month, an expert on a topic related to Williams syndrome will be conducting a webinar and Q/A session. They will take questions prior to the session and answer those, along with offering some background on the topic at hand, and there will be time at the end for organic questions and discussions that arise doing the session. To accomodate work and family schedules, as well as time zones, these online sessions will be held at 9 p.m. EST and will run one hour. These sessions are being provided because we know that some areas of the country don't have much in the way of specialized clinics or support and we want to reach as many parents and caregivers as possible. They will be recorded and available online for those who can't participate in real time.
We are also offering Ask the Expert: IEP Edition. Every month, our education consultant Robin Pegg will be hosting a session specifically about IEPs. Please register and send in your questions--we look forward to hearing from you and making these sessions a valuable experience for all.
Schedule for the year for "Ask the Expert":
Michelle Self, PhD
Transition to school: From Pre-school to Elementary (registration link coming soon)
Ages 3-7 years old
Carolyn Mervis, PhD
Terry Monkaba, MBA
Applying for SSI
Chris McDougle, MD
Attention/Anxiety - Medication Management
Past Webinars and recordings
Robin Pegg will be hosting a session specifically about IEPs every month.
April 15 Robin Pegg, MEd
April 29, 2019: Marisa Fisher, PhD
May 29 at 9 p.m. EST: Anxiety & Behavior
Karen Levine, PhD
June 15: Ask the Expert, IEP edition with WSA education condultant Robin Pegg.
Ask the Expert with Stella Beard July 8: 9 p.m. EST
Join us for discussion around transition supports (ages 14 and older): whether students are transitioning to community based supports; the workplace, or post secondary education opportunities.
Age group covered: Teens/Adults
Access to Post-Secondary Education
Laura Chesser, WSA July 31 at 9 p.m. EST
Ask the Expert: IEP Edition with Robin Pegg, August 15 at 9 p.m. EST
August 19: Barbara Pober, MD Clinical Geneticist
Aging and WS Subject matter is open to all parents/caregivers, but will focus on adults and aging individuals with WS.