After the recent passing of a couple of our loved ones with WS, there's been a request for some materials regarding sudden death and cardiac issues in Williams syndrome.

Below you'll find links to resources and research papers. We've also made 3 sessions from the 2024 WSA National Convention in Phoenix available for free to the public for a limited time.

Cardiovascular Concerns
WS Specialty Clinics - to find specialists for continued care of an individual with WS
Collaborative Registry for Williams Syndrome (CReWS) - the more information we can provide to our clinicians and researchers, the more comprehensive the care will be for everyone.
WSA Resource Page
- Adverse cardiac events in children with Williams syndrome undergoing cardiovascular surgery
- Congenital Supravalvular Aortic Stenosis and Sudden Death Associated with Anesthesia: What's the Mystery?

Cardiac Arrhythmia from the 2024 WSA National Convention

Cardiac Considerations for Individuals with WS from the 2024 WSA National Convention

Sudden Death and WS - What to Tell/Ask the Anesthesiologist Before a Procedure from the 2024 WSA National Convention

Cardiac and Sudden Death information