The Williams Syndrome Association is a small organization with a big mission. With only a handful of staff members, we rely heavily on our powerful network of volunteers. With your help, we can enrich the lives of more individuals with Williams syndrome, raise awareness, host more events and so much more.

There are numerous opportunities for volunteerism within the WSA. Whether you prefer to donate your time at childcare during a convention or host a fundraiser to raise money, we would love an extra set of hands! 


To offer volunteer support at WSA events, including camps and national conventions, or if you are in the Michigan area and would like to lend a hand in the office, please contact the national office.


We rely on Regional Chairs (RCs) in each of our 19 regions nationwide. They help disseminate information, represent the WSA, coordinate local events and more. Find out how to get involved and get information on your local Regional Chairperson.


The WSA Board of Trustees sets the strategic vision and guides the association in its growth. Our current board is comprised of 14 adults (including 2 with Williams syndrome) from across the country.  The Board works to ensure that the WSA’s programs are aligned with its mission.  They also have the fiscal responsibility of budget oversight and a personal “give or get” policy for fundraising.  The WSA works hard to insure that Board is well-represented demographically, with members of differently aged children who live in various areas of the country, have different specialties and represent different cultures.

For more information about Board job descriptions or to find out about board member nominations, please contact the national office.