The Williams Syndrome Association is a small organization with a big mission. With only a handful of staff members, we rely heavily on our powerful network of volunteers. With your help, we can enrich the lives of more individuals with Williams syndrome, raise awareness, host more events, and much more.

There are numerous opportunities for volunteerism within the WSA. Whether you prefer to donate your time at childcare during a convention or host a fundraiser to raise money, we would love an extra set of hands! If you'd like to read in more detail about our volunteer opportunities, you can review our WSA Volunteer Handbook.


To offer volunteer support at WSA events, including camps and national conventions, or if you are in the Michigan area and would like to lend a hand in the office, please contact the national office.


We rely on Family Support Network (FSN) volunteers in each state of our 19 regions nationwide to connect with families locally. Our FSN volunteers from each state connect with local families personally to answer questions and provide support, help locate and distribute local resource information, coordinate local events, and more. Find out how to get involved and get information on your local Family Support Network volunteer.

There are two types of Family Support Network volunteers you may see mentioned:

  • Family Support Specialist: Volunteers who support local families in multiple ways, including being the first point of contact locally when a family receives a diagnosis or moves into the area, providing information about local resources, and hosting social events for local families.
  • Family Support Volunteer: Anyone who volunteers to support other families, either locally or virtually, in a specific way, which could include connecting with other families, leading a networking group on Zoom, or hosting an occasional social event, fundraiser, or walk, for example.

If you're interested in volunteering in our Family Support Network, contact the national office or email


The WSA Board of Trustees sets the strategic vision and guides the association in its growth. Our current board is comprised of 14 adults (including 2 with Williams syndrome) from across the country.  The Board works to ensure that the WSA’s programs are aligned with its mission.  They also have the fiscal responsibility of budget oversight and a personal “give or get” policy for fundraising.  The WSA works hard to ensure that Board is well-represented demographically, with members of differently aged children who live in various areas of the country, have different specialties and represent different cultures.

For more information about Board job descriptions or to find out about board member nominations, please contact the national office.