Adult life can open new horizons and new opportunities for growth. Leaving high school does not signal an end to learning. Many young adults with Williams syndrome are entering post-secondary programs - both academic and life skills oriented, and many express a desire to live and work outside their parent's home.
As parents or guardians, we are faced with the challenge of helping our adult children realize their dreams - a challenge with very sweet rewards when we see our children, happily living on their own and maintaining full or part-time employment in a job they enjoy.
In order to successfully meet the challenge, arrangements (through the school system or private agencies) for vocational assessments, work experiences, and government support (through SSI, Vocational Rehab Agencies, Developmental Disabilities Councils, etc) must be made. If your child wishes to continue in a post-secondary program and/or live outside your home, be sure to research the many types of available options. This can be a lengthy process - we suggest beginning your research as early as possible - especially for independent living options such as supported living, group homes, adult foster care, private residential programs or even homeownership.
Medical vigilance must also continue. Adulthood for those with WS is not without health concerns - both new and pre-existing.
There is much to do, but it is not necessary to embark on these challenges alone or without support.
Learn more about the topics below.
Graduation from high school is an important rite of passage for every child. For students with challenges such as William syndrome, this “natural” transition requires more planning, negotiation, and decision making to determine where to live and work, and whether or not to continue education.
Individuals with Williams syndrome attend a wide-range of post-high school programs - from full inclusion without supports in a 4-year college, to day programming for life-skills and vocational training, and many different options in between. There is something for everyone, and both the number of program options and the types of programs available are growing annually.
So much goes into the decision of where we live. And the process is the same, no matter who we are, and whether or not we have Williams syndrome. It begins with a basic understanding of wants, dreams, and desires, followed by a look at the natural assets a community can provide to help ensure success for our son or daughter, then finding a way to make the community of choice viable financially. There are a growing number of housing and funding opportunities to choose from…research and preparation are the keys to success.
Most adults with Williams syndrome thrive on opportunities to “give back” and make a difference in their communities. Meaningful employment and/or volunteer opportunities are a natural way to give back. Locating meaningful employment and the agencies to provide the necessary supports that many individuals with Williams syndrome need to realize success often requires diligence, patience, and hard work, especially with a staggering 81% of adults (18+) with developmental disabilities unemployed.
Adventure Seekers are adults with Williams syndrome who enjoy socializing, spending time with each other, and traveling together to a variety of destinations throughout the United States. This group has evolved from 40‐50 adults to 400+ adults gathering virtually on zoom regularly.
