We all want increased awareness for Williams syndrome. But it is likely that for each of us, the importance of awareness varies. Each of our children is AN INDIVIDUAL with Williams syndrome – that means that each of our journeys with WS is individual too. If our children are medically fragile, research may be the driving force for awareness; if our children are struggling in school, awareness leading to better education may be paramount. Similarly if our child is young and we are just embarking on our journey with Williams syndrome, our reasons for awareness maMore about Why is Awareness Month Important?
You are here
Posted May 01, 2017, by terrymonkaba
Last month, Jonathan Martinez, a 9 year old boy with Williams syndrome, was one of three victims of a senseless shooting in his special education classroom in San Bernardino, CA. On that day, we grieved the loss of a member of our Williams syndrome family – a collective family that, in recent years, has grown in both size and emotional connection through social media. In the face of such a terrible tragedy, we wondered again what the world was coming to and what might be next. More about A Special Awareness Campaign
Posted Apr 20, 2017, by lauriej1
Posted Feb 01, 2017, by lauriej1
Join the WS Research Effort: The WSA hopes that you will join this effort to increase Registry membership, which is part of our biggest research effort to date. Have you updated your information on the registry?To help us learn how people do over time, there is a yearly survey for you to complete about your family member with WS. More about Join The Registry!
Posted Jan 26, 2017, by lauriej1
Williams syndrome often presents with the trait of individuals having very social personalities, which can be a good thing. However, with the increase in online activity and popularity with connecting on social networks, the sociability and trusting natures of individuals with WS can pose some challenges. More about WSA Blog: Online Behavior of Adults with WS