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Posted Feb 01, 2017, by lauriej1
Join the WS Community: Take part in Registry Day on March 1! The WSA hopes that you will join this effort to increase Registry membership. Registry Day celebrates the Registry, the WSA’s boldest effort to solve key medical issues in WS. The surveys used within the Registry help gather important data about Williams syndrome, which is valuable for researchers and families. Consider joining to be a part of this effort.More about Registry Day is March 1, 2017!
Individual with Williams syndrome connected online
Posted Jan 26, 2017, by lauriej1
Williams syndrome often presents with the trait of individuals having very social personalities, which can be a good thing. However, with the increase in online activity and popularity with connecting on social networks, the sociability and trusting natures of individuals with WS can pose some challenges. More about WSA Blog: Online Behavior of Adults with WS
Posted Dec 29, 2016, by lauriej1
As we send good wishes for a happy and healthy 2017, we wanted to reflect on all that the WSA and our supporters have accomplished in 2016, and what better way than to show our year in pictures? Please enjoy our 2016 highlight video--there were so many great moments! More about Highlights of 2016 Video: Happy New Year!
Posted Nov 15, 2016, by lauriej1
Those of us who are parents assume that we will be our childrens’ hero- and we are, MOST of the time.  But when we become parents to an individual with Williams syndrome, the potential for our role as heroes changes dramatically... and not just in regard to our son or daughter. Throughout our journey with a child with Williams, we will both be heroes and receive the benefits of many heroic acts.More about WSA Blog: Everyday Heroes
Emmy
Posted Feb 04, 2016, by Guest
She is everything I thought she would be. Not at first, though. Not when we found out about Williams syndrome. I wasn’t ok with the diagnosis at first and I thought, “Please just let me be ok with this by the time she’s 8 years old.” I gave myself ample time to let it sink in. More about WSA Blog:Four and a half years old..but who is counting?