Increased knowledge of Williams syndrome is a year-round priority for the WSA. Our vision is that all individuals with Williams syndrome will have the support they need throughout their lifespan to live healthy, self-directed, productive and fulfilling lives, and that is a tall order. That’s why each year during the month of May, we ask that everyone in our community joins us in a special effort to increase awareness in your communities.
More about Awareness Month 2019: A Message from Terry Monkaba
You are here
Blog
Posted Apr 29, 2019, by lauriej1
Team WSA's awareness month involvement in the Long Island Festival of Races has inspired a young athlete (and his mother!) to run and grow over the years. Melinda Dolinsky got involved because of her son Steven, who has WS; son Andrew, now a 14 year old, got involved to honor his older brother. This is their seventh year, and both look forward to it every year. This year, Andrew is finally old enough to run the 10K! Their brotherly bond and the inspiration of racing is quite the story—from Andrew’s first race to now training in triathlon!
More about Long Island Festival of Races "Team WSA" Inspires a Brother/Athlete
Posted Mar 14, 2019, by lauriej1
The WSA recommends using “people first” language as we do in our communications—language that puts the person before their diagnosis. Please read our our new guide.
More about Disability Language Style Guide: Recommendations from the WSA
Posted Mar 02, 2019, by lauriej1
Miracle Flights provides children and their families free flights to distant, specialized care and valuable second opinions.
More about Miracle Flight Program for Medical Travel
Posted Jan 29, 2019, by lauriej1
Read how our new WSA board of trustees president experienced a fanscinating coincidence that led her to serve.
More about Science and Motherhood Collide: Journey to the WSA