Those of us who are parents assume that we will be our childrens’ hero- and we are, MOST of the time.  But when we become parents to an individual with Williams syndrome, the potential for our role as heroes changes dramatically... and not just in regard to our son or daughter. More

Families often ask if they should participate in research studies, and what the difference is between research participation and visiting a private clinician. A portion of nearly every clinical research project includes basic cognitive testing, and when we see the same researcher multiple times,... More

Join us at Cipriani Wall St. on March 9, 2017 for our own "White Night" - capturing the joy and wonder that we have realized as Williams syndrome has emerged from the dark, into the light. The event will celebrate the spirit of individuals with Williams syndrome and raise funds for life-saving... More

Event Calendar

Thursday December 8, 2016

Sunday December 11, 2016