The diagnosis of Williams syndrome presents challenges for every individual and his or her family. Williams syndrome is a spectrum disorder. There is a great deal of variability in individuals throughout the spectrum. Medical concerns and learning challenges, emotional issues, and anxiety are common and can be all-consuming at times. The severity of the challenges varies and can ebb and flow over the years.
The coronavirus/COVID-19 pandemic has had a dramatic impact on everyone. As an increasing number of places begin loosening their initial restrictions, every family is now struggling to establish a “new normal”.
When advocating for your child with WS or for yourself, it is important to recognize that WS is a rare enough disorder that most healthcare professionals would not be expected to be aware of the constellation of issues that can be involved.
Miracle Flights was founded in 1985 as a nonprofit health and welfare flight organization that provides children and their families free flights to distant, specialized care and valuable second opinions.
The WSA has always strived to provide current, relative, and quality information for individuals with Williams syndrome and their families. Medical research, education, technologies, housing, and social issues continue to be at the forefront of our concerns.