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Home » WSA Blog

Medical

No Better Way to Celebrate

06/08/2022 - 5:31 pm |

Terry Monkaba

Celebrating 40 years and all that we’ve accomplished as an organization and a community is a wonderful milestone. We’ve learned so much about Williams syndrome and provided a solid foundation for increased learning and excellent care for the future.

  • Read more about No Better Way to Celebrate

Williams Syndrome is Complicated

03/09/2021 - 5:09 am |

Terry Monkaba

The diagnosis of Williams syndrome presents challenges for every individual and his or her family. Williams syndrome is a spectrum disorder. There is a great deal of variability in individuals throughout the spectrum. Medical concerns and learning challenges, emotional issues, and anxiety are common and can be all-consuming at times. The severity of the challenges varies and can ebb and flow over the years.

  • Read more about Williams Syndrome is Complicated

Decision Making in Light of the COVID-19 Crisis

Fri, 08/14/2020 - 2:37 pm EDT |

Jessica Waxler, MS and Barbara Pober, MD.

The coronavirus/COVID-19 pandemic has had a dramatic impact on everyone.  As an increasing number of places begin loosening their initial restrictions, every family is now struggling to establish a “new normal”.  

  • Read more about Decision Making in Light of the COVID-19 Crisis

Seeking Second Opinions and Providing WSA Resources

Tue, 01/07/2020 - 9:36 pm EST |

Ryan Cordry, MD and Marty Levinson, MD

When advocating for your child with WS or for yourself, it is important to recognize that WS is a rare enough disorder that most healthcare professionals would not be expected to be aware of the constellation of issues that can be involved.

  • Read more about Seeking Second Opinions and Providing WSA Resources

Miracle Flights: Help with Medical Travel

Sat, 03/02/2019 - 9:58 am EST |

WSA Staff

Miracle Flights was founded in 1985 as a nonprofit health and welfare flight organization that provides children and their families free flights to distant, specialized care and valuable second opinions.

  • Read more about Miracle Flights: Help with Medical Travel

Health and Wellness

02/26/2015 - 1:07 pm |

Nanci Rogers, MSN, CRNA

The WSA has always strived to provide current, relative, and quality information for individuals with Williams syndrome and their families. Medical research, education, technologies, housing, and social issues continue to be at the forefront of our concerns.

  • Read more about Health and Wellness

Contact us

560 Kirts Blvd. Suite 116
Troy, MI 48084-4153

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Inclusion statement

The WSA upholds the following positions on inclusion.  We believe that:

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and that individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

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