The WSA lost a very special friend and volunteer this month with the passing of Barbara Scheiber. Barbara and her husband Walter first found the WSA in 1994, when they watched the 60 Minutes special on Williams syndrome and realized that their 36-year-old son, Robert, had nearly every characteristic mentioned. A phone call to Terry at the national office the day after the show began what would be more than 20 years of very special support to the WSA.
2019 is the 10th anniversary of Team WSA at the Long Island Marathon Festival of Races. With runners and walkers registered for the one mile run up through the full marathon, runners and teams fundraising for the WSA have raised more than $300,000 since 2010. This year’s event, the weekend of May 4th and 5th, will only add to that generous total. Thank you to Rob Dell'Unto and his family as well as the committee who has worked to organize this every year.
In 2014, the WSA was honored to welcome more than 800 volunteers who, in turn, logged more than 13,000 hours on our behalf! They helped us at the National Convention and throughout Awareness Month. They lent their assistance at local conferences, fundraisers, and social events. They are there for us as Board members and Regional Chairs. They participate in our special program initiatives and on Board committees. Volunteers are an integral part of everything we do, providing nearly 2 years of service hours to our membership during just 1 year!