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Home » Make Connections » Connect with your Local Community

Missouri

The Williams Syndrome Association is organized into 19 regions across the United States. Missouri is part of the Heartland region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Family Support Volunteer:
Julie Fernandez of O'Fallon, Missouri
Email

Areas of focus: teens, young adults

Local Facebook Group:
Family Support Volunteer:
Sarah Moonier of Fenton, Missouri
Email

Areas of focus: new diagnosis, children

Local Facebook Group:

Clinics in MO

St. Louis Children's Hospital logo

St. Louis Children's Hospital Williams Syndrome Center

One Children's Place
St. Louis, Missouri 63110

Dr. Beth Kozel, Director
(314) 454-6093 (choose 3 after the prompt)
Website

St. Louis Children's Hospital and Washington University specialists that commonly care for individuals with Williams syndrome include Genetics, cardiologists, endocrinologists Nephrologists, Ophthalmologists, ENTs, Orthopedic Surgeons, and Urologists.

Upcoming Events in MO

Anywhere, Anytime Virtual Fundraising Walk for Williams

Thu, 06/13/2024 - 12:00 am EDT to Sun, 12/01/2024 - 12:00 am EST

FSN - Only Child Family Support Group

Wed, 11/20/2024 - 8:00 pm EST

FSN - Parents/Caregivers of Adults with WS and Challenging Behaviors Meeting

Wed, 11/20/2024 - 8:00 pm EST

Adventure Seekers Jamboree: Thursday Hullabaloo! Nov 21

Thu, 11/21/2024 - 7:00 pm EST

FSN - Craft & Convo for Parents/Caregivers

Mon, 11/25/2024 - 8:00 pm EST

FSN - Complex Communicators and Feeding Challenges Group for Parents/Caregivers

Wed, 12/04/2024 - 8:00 pm EST

FSN - December Support Parent/Caregiver Wrap #1

Mon, 12/09/2024 - 8:00 pm EST

Adventure Seekers Jamboree: Tuesday Shenanigans! Dec 17

Tue, 12/17/2024 - 4:00 pm EST

A Family's Personal & Professional Journey with Williams Syndrome

Tue, 12/17/2024 - 6:00 pm EST

Adventure Seekers Jamboree: Thursday Hullabaloo! Dec 19

Thu, 12/19/2024 - 7:00 pm EST

FSN - December Support Parent/Caregiver Wrap #2

Mon, 12/30/2024 - 8:00 pm EST

Cruise 102: Basics and First Timers

Wed, 01/08/2025 - 8:00 pm EST

Cruise 201: Advanced Cruising

Wed, 03/05/2025 - 8:00 pm EST

Cruise 301: Last Looks and Cruising Craziness

Wed, 05/28/2025 - 8:00 pm EDT

The 2025 WSA Adventure Seekers Cruise

Sat, 06/21/2025 - 12:00 am EDT to Sat, 06/28/2025 - 12:00 am EDT

Contact us

243 Broadway Unit 9188
Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Position on Inclusion

The WSA upholds the following positions on inclusion. We believe that: 

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings 
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

Funding priorities

Funding priorities pie chart.

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