Skip to main content
Williams Syndrome Association logo.
Donate
  • Join
  • Events
  • Shop
  • Español
  • Forums
  • About Us
    • Overview
    • Structure & Administration
      • Board of Trustees
      • Medical Advisors
      • Executive Director & Team
      • Consultants & Partners
    • Position Statements
    • Programs
    • Newsletters
    • Media & Press Center
    • jobs
  • Education
    • Overview
    • Getting Started in School
    • Creating an IEP
    • Education Strategies
    • Testing & Evaluation Strategies
    • Therapeutic Strategies for Education
    • Transition Strategies - High School to Adult Life
    • Life Skills & Post Secondary Programs
    • Featured Education Resources
    • Virtual Education Resources
    • Convention
    • Resources
  • Medical
    • Overview
    • Diagnosing Williams Syndrome
    • Healthcare Guidelines
    • Anesthesia Concerns
    • Cardiovascular Concerns
      • Cardiac and Sudden Death information
    • Gastrointestinal Concerns
    • Neurodevelopment & Behavioral Health
      • WS and Sexuality
    • Williams Syndrome Clinics
    • Collaborative Registry for WS (CReWS)
    • renovascular hypertension collaborative
    • Resources
    • Research
      • Overview
      • Current Studies
      • Grant Opportunities
      • Renovascular Hypertension Collaborative
  • Life with WS
    • Overview
    • What is Williams syndrome?
      • Overview
      • General Information
      • Diagnosing WS
      • New Diagnosis: First Steps
      • Therapeutic Interventions
      • Talking to Children about WS
      • Frequently Asked Questions
    • Family Support
      • Overview
      • Family Support Network
      • Support Groups
      • Connect with Others
      • Available Aid and Assistance
      • Financial Planning
      • Internet Safety and Assistive Technology Resources
      • Grandparents
      • Siblings
      • Resource Organizations
      • International Organizations
    • WSA Media and Entertainment
      • The Starry-Eyed Podcast
      • WS Audio, Video, and Text
      • News Items
      • Blog
    • Adult Life
      • Overview
      • Transition Strategies - High School to Adult Life
      • Life Skills & Post Secondary Programs
      • Housing
      • Employment
      • Adventure Seekers
      • Voting Resources
      • Wellness Wednesdays and Mindfulness Mondays with Nick
    • Programs
      • Become a Member
      • Convention
      • Adventure Seekers
      • Camps
      • Financial Aid & Scholarships
      • Grant Opportunities
    • Frequently Asked Questions
    • Attend an Event
    • Convention
    • Resources
  • Get Involved
    • Overview
    • Walks for Williams
    • Awareness Month
      • Awareness Month Toolkit!
    • Become a Member
    • Donate
    • Fundraise
    • Volunteer
    • Event Calendar
    • Host a Social/Connection Event
    • Vendor Network
    • Share Your Story
    • Your Contributions at Work
    • Shop our Merch
    • Contact the WSA

You are here

Home » Make Connections » Connect with your Local Community

Rhode Island

The Williams Syndrome Association is organized into 19 regions across the United States. Rhode Island is part of the New England region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Family Support Volunteer:
Rhode Island
Email | Phone: 800.806.1871

Contact the WSA national office to be connected with local support.

Local Facebook Group:
Family Support Volunteer:
Currently Seeking a Family Support Volunteer

If you live in this state and would like to provide support to families in your area, please contact familysupport@williams-syndrome.org.

Upcoming Events in RI

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 07/15/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 07/17/2025 - 7:00 pm EDT

Wellness Wednesday Live! with Nick Doris

Wed, 08/13/2025 - 1:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 08/19/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 08/21/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 09/16/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 09/18/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 10/21/2025 - 4:00 pm EDT

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 10/23/2025 - 7:00 pm EDT

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 11/18/2025 - 4:00 pm EST

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 11/20/2025 - 7:00 pm EST

Adventure Seekers Jamboree - Tuesday Shenanigans!

Tue, 12/16/2025 - 4:00 pm EST

Adventure Seekers Jamboree - Thursday Hullabaloo!

Thu, 12/18/2025 - 7:00 pm EST

Dream Team Saturdays - For Adventure Seekers 38+

Sat, 12/27/2025 - 2:00 pm EST

Contact us

243 Broadway Unit 9188
Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

Follow us

Position on Inclusion

The WSA upholds the following positions on inclusion. We believe that: 

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings 
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

Funding priorities

Funding priorities pie chart.

  • Privacy Policy
  • Disclaimer
  • Non-discrimination statement
  • dei statement
  • media & press center
  • 501(c)(3) organization
Copyright © 2025 Williams Syndrome Association | Web design