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Home » WSA Blog

Parent Perspective

Four-and-a-half Years Old...But Who Is Counting?

02/04/2016 - 11:20 am |

Vanessa Coggshall

By Vanessa Coggshall, Guest Blogger and Parent. 
Originally posted on her blog, Williams Syndrome Smile

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Moments in Time

11/23/2015 - 11:29 am |

Rikki Morris

By Rikki Morris, Guest Blogger and Parent.

Our story is about moments in time, and the significance of each one.

Although many people have said it before, having a child with Williams syndrome teaches you more about moments than you ever knew before.

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Fifty Frozen Cokes to Bike Riding

01/24/2013 - 2:17 pm |

Michelle Self, PhD

Alex was diagnosed with Williams syndrome when he was six weeks old. We read the pamphlets and went to the Williams Syndrome Association website. We found a lot of information about the types of things that Alex would probably not be able to do. But, we also knew that despite the typical expectations, Alex was his own person. We didn’t know what he might be capable of, and we certainly weren’t going to hold him back.

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Unexpected Features

01/24/2013 - 2:15 pm |

Vanessa Coggshall

When Emmy was born, we didn’t know she had Williams syndrome. But, after spending a few days with her, I could tell that something was different with our little girl.

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That Something Special

01/24/2013 - 2:14 pm |

Terry Monkaba

It's hard to believe now but 26 years ago, when I was pregnant with Ben, having your first child at 35, was considered "old". But we were thrilled, and my husband Gary and I approached this special time with all the attention we had given our careers. We made recordings of each other reading our favorite children's books and played those and Vivaldi's 4 seasons to our unborn son each evening.

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Moments in Time: Parent's Stories

01/24/2013 - 2:11 pm |

Vanessa Coggshall

Moments in Time: Parents write about special moments in the lives of their children with Williams syndrome

One thing that parents, and other family members need when they find out their child has Williams syndrome is support. We have a wonderful community on the website, Listserv, and Facebook pages. We also have informative books that people can buy, such as Fulfilling Dreams, and Ben’s Big Decision.

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Contact us

243 Broadway Unit 9188
Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Position on Inclusion

The WSA upholds the following positions on inclusion. We believe that: 

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings 
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

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