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Williams Syndrome Clinics

Williams syndrome clinics are "specialty" clinics often located in children's hospitals.  They are established to provide a place where parents can bring their children to see specialists with an excellent knowledge of Williams syndrome.  It is not essential to bring your child to a WS clinic but it can be very helpful, especially for an initial, complete evaluation or when a serious problem is suspected.

WS clinics can provide medical evaluations by several different specialists during a single 1 - 2 day visit, as well as evaluations by therapists that can often be used to help access services for your child locally. There are several Williams syndrome clinics around the United States, and their offerings vary.  It's important to call and find out exactly what services the clinic nearest you can provide.

If you can, get a referral from your physician to the clinic you would like to visit. This will help you obtain insurance coverage for the visit.

The current Williams syndrome clinics are:

Arkansas

Massachusetts

New York

Note: Director: R. Thomas Collins, II, MD, formally of The Multidisciplinary Connective Tissue Clinic at Arkansas Children's Hospital, has moved to Stanford, and plans to open a clinic at the Lucile Packard Children's Hospital there. Details forthcoming fall 2017.
 

Mass General Hospital
55 Fruit St.
Boston, MA 02114
Dr. Barbara Pober
Sandy (617) 726-1561

Genetics website

Women and Children's Hospital of Buffalo
219 Bryant St.
Buffalo, NY 14222
Dr. Laurie Sadler
(716) 878-7530

Website

Note: in November 2017, the hospital will relocate to the
Buffalo Niagara Medical Campus and be renamed
The John R. Oishi Children's Hospital.

Florida

The Children's Hospital, Boston
300 Longwood Ave.
Boston, MA 02115
Liz Bain (617) 355-5429

The clinic has been providing interdisciplinary evaluations for children and adolescents with Williams syndrome since 1990. Participants in this program undergo a three day assessment by specialists with extensive experience in
caring for children with Williams syndrome. Specialty evaluations include a medical evaluation with Dr. Amy Roberts, a cardiac evaluation with Dr. Leslie Smoot, neuropsychological testing, psychopharmacological assessment (if age appropriate), a behavioral psychology evaluation, a hearing test, a speech and language evaluation, a physical therapy evaluation, and an occupational therapy evaluation.

Children's Hospital of Montifiore

Center for Congenital Disorders
3415 Bainbridge Ave.
Bronx, NY 10467
Dr. Robert Marion
(718) 741-2323

Website

Nemours Children's Health System Cardiac Center/Williams syndrome Program 

Gul H. Dadlani, MD Chief, Pediatric Cardiology

13535 Nemours Parkway 4th Fl., Orlando, FL 407-650-7715

Click for website

Pennsylvania

Missouri

Utah

Children's Hospital of Philadelphia
Williams syndrome Multispecialty Clinic
34th St. & Civic Center Blvd.
Philadelphia, PA 19104
Daria Tolentino (215) 590-3376
(After call is connected, you will choose option #3, then option #2)

Click for website

St. Louis Children's Hospital
Williams Syndrome Center
One Children's Place
St. Louis, MO 63110
Director: Beth Kozel, MD
(314) 454-6093 (choose 3 after the prompt)
website
St. Louis Children's Hospital and Washington University specialists that commonly care for individuals with Williams syndrome include Genetics, cardiologists, endocrinologists NephrologistsOphthalmologistsENTsOrthopedic Surgeons, and Urologists.  In addition, individuals with Williams syndrome often benefit from the involvement of specialized therapy services including Physical, Occupational and, Speech Therapists, Feeding Teams, and Behavioral and Psychological Therapists. 

Primary Children's Medical Center
Adult Congenital Heart Disease Clinic
100 North Mario Capecchi Dr.
Salt Lake City, UT 84113
Angela Yetman, MD
Nancy M. Veit (801) 662-5462
CARDIOLOGY ONLY

Website

Ohio

 

 

Nationwide Children's Hospital
700 Children's Dr.
Columbus, OH 43205

Developmental & Behavioral Pediatrics; Directors: Jennifer Walton, MD and Marilee Martens, PhD

To make an appointment for the WS Clinic, please call (614) 722-4050. For more information, visit their web site.