You are here

Williams Syndrome Clinics

Williams syndrome clinics are "specialty" clinics often located in children's hospitals.  They are established to provide a place where parents can bring their children to see specialists with an excellent knowledge of Williams syndrome.  It is not essential to bring your child to a WS clinic but it can be very helpful, especially for an initial, complete evaluation or when a serious problem is suspected.

WS clinics can provide medical evaluations by several different specialists during a single 1 - 2 day visit, as well as evaluations by therapists that can often be used to help access services for your child locally.There are several Williams syndrome clinics around the United States.  Clinic offerings vary.  It's important to call and find out exactly what services the clinic nearest you can provide.

If you can, get a referral from your physician to the clinic you would like to visit. This will help you obtain insurance coverage for the visit.

The current Williams syndrome clinics are:

Arkansas

Massachusetts

New York

The Multidisciplinary Connective Tissue Clinic at Arkansas Children's Hospital
1 Children's Way, Mail Slot 512-3
Arkansas Children's Hospital
Little Rock, AR 72202
Director: R. Thomas Collins, II, MD
Clinic Coordinator: Beth Martin, RN
Appointments: (501) 364-2088

Mass General Hospital
55 Fruit St.
Boston, MA 02114
Dr. Barbara Pober
Sandy (617) 726-1561

Children's Hospital of Buffalo
219 Bryant St.
Buffalo, NY 14222
Dr. Laurie Sadler
(716) 878-7530

Florida

 

Helping Children with Challenges
21 Worthen Road, Suite 2
Lexington, MA 02421
Dr. Karen Levine
(781) 799-4348
karen@DrKarenLevine.com
website

 

Children's Hospital of Montifiore
Center for Congenital Disorders
3415 Bainbridge Ave.
Bronx, NY 10467
Dr. Robert Marion
(718) 741-2323

All Children’s Hospital
Johns Hopkins Medicine
501 6th Avenue South
St. Petersburg, FL 33701
Heather Wilson
727-767-6898
Heather.Wilson@jhmi.edu

Pennsylvania

 

The Children's Hospital, Boston
300 Longwood Ave.
Boston, MA 02115
Liz Bain (617) 355-5429

Utah

Children's Hospital of Philadelphia
34th St. & Civic Center Blvd.
Philadelphia, PA 19104
Daria Tolentino (215) 590-3376
(After call is connected, you will choose option #3, then option #2)

Primary Children's Medical Center
Adult Congenital Heart Disease Clinic
100 North Mario Capecchi Dr.
Salt Lake City, UT 84113
Angela Yetman, MD
Nancy M. Veit (801) 662-5462
CARDIOLOGY ONLY

Ohio

 

Missouri

Nationwide Children's Hospital
Nisonger Center
McCampbell Hall
1581 Dodd Drive
Columbus, OH 43210
Dr. Marilee Martens
To make an appointment for the WS Clinic, please contact Andrea Subler, MSW, LSW, in Developmental and Behavioral Pediatrics at Nationwide Children's Hospital at: (614) 722-6115.

 

 

St. Louis Children's Hospital
Williams Syndrome Center
One Children's Place
St. Louis, MO 63110
Director: Beth Kozel, MD
(314) 454-6093 (choice 2 after the prompt)
website
 

For additional questions about Williams syndrome clinics, please contact the WSA office here.