Williams syndrome clinics are "specialty" clinics often located in children's hospitals. They are established to provide a place where parents can bring their children to see specialists with an excellent knowledge of Williams syndrome. It is not essential to bring your child to a WS clinic but it can be very helpful, especially for an initial, complete evaluation or when a serious problem is suspected.
WS clinics can provide medical evaluations by several different specialists during a single 1 - 2 day visit, as well as evaluations by therapists that can often be used to help access services for your child locally.There are several Williams syndrome clinics around the United States. Clinic offerings vary. It's important to call and find out exactly what services the clinic nearest you can provide.
If you can, get a referral from your physician to the clinic you would like to visit. This will help you obtain insurance coverage for the visit.
The current Williams syndrome clinics are:
|Mass General Hospital
55 Fruit St.
Boston, MA 02114
Dr. Barbara Pober
Sandy (617) 726-1561
|Children's Hospital of Buffalo
219 Bryant St.
Buffalo, NY 14222
Dr. Laurie Sadler
All Children’s Hospital
|Helping Children with Challenges
21 Worthen Road, Suite 2
Lexington, MA 02421
Dr. Karen Levine
|Children's Hospital of Montifiore
Center for Congenital Disorders
3415 Bainbridge Ave.
Bronx, NY 10467
Dr. Robert Marion
|Children's Hospital of Philadelphia
34th St. & Civic Center Blvd.
Philadelphia, PA 19104
Daria Tolentino (215) 590-3376
(After call is connected, you will choose option #3, then option #2)
|The Children's Hospital, Boston
300 Longwood Ave.
Boston, MA 02115
Liz Bain (617) 355-5429
|Primary Children's Medical Center
Adult Congenital Heart Disease Clinic
100 North Mario Capecchi Dr.
Salt Lake City, UT 84113
Angela Yetman, MD
Nancy M. Veit (801) 662-5462
|Nationwide Children's Hospital
1581 Dodd Drive
Columbus, OH 43210
Dr. Marilee Martens
To make an appointment for the WS Clinic, please contact Andrea Subler, MSW, LSW, in Developmental and Behavioral Pediatrics at Nationwide Children's Hospital at: (614) 722-4050.
|The Multidisciplinary Connective Tissue Clinic at Arkansas Children's Hospital
1 Children's Way, Mail Slot 512-3
Arkansas Children's Hospital
Little Rock, AR 72202
Director: R. Thomas Collins, II, MD
Clinic Coordinator: Beth Martin, RN
Appointments: (501) 364-2088
St. Louis Children's Hospital
For additional questions about Williams syndrome clinics, please contact the WSA office here.