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Home » Make Connections » Connect with your Local Community

California

The Williams Syndrome Association is organized into 19 regions across the United States. California is split into two regions. Southern California is in the Canyon region and Northern California is in the Sierra region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Family Support Volunteer:
Randi Baldwin of Saugus, California
Email

Area of focus: adults

Local Facebook Group:
Family Support Volunteer:
Nikki Castellanos of Alameda, California
Email

Areas of focus: new diagnosis, young children. Speaks Spanish. 

Local Facebook Group:
Family Support Volunteer:
Maricela Cabrera of Fontana, California
Email

Areas of focus: children, teens. Speaks Spanish. 

Local Facebook Group:
Family Support Specialist:
Verna Hornbaker of Riverdale, California
Email

Area of focus: adults, homeschooling, WSA camp.

Local Facebook Group:
Family Support Volunteer:
Sandy Miller of Simi Valley, California
Email

Area of focus: adults, physical therapy.

Local Facebook Group:
Family Support Specialist:
Julia Uhll of San Diego, California
Email

Areas of focus: adults, state resources, creating housing. Speaks Spanish.

Local Facebook Group:
Family Support Volunteer:
Heather West of Canoga Park, California
Email

Areas of focus: teens, young adults, advocacy.

Local Facebook Group:

Clinics in CA

Williams Syndrome Specialty Multidisciplinary Clinic, Stanford Medicine Children’s Health

1195 West Fremont Avenue
Sunnyvale, California 94087

Dr. Claudia Algaze, Director
Call (650) 497-7278
Website

Stanford Medicine Children’s Health has assembled a care team of the top pediatric specialists in the nation to offer coordinated comprehensive care for your child, from specialties that include: Cardiologist, Dentist, Developmental Behavioral Specialist, Endocrinologist, Geneticist, Nephrologist, Neurologist, Nutrition, and Psychiatrist all in a single day visit.

Upcoming Events in CA

Anywhere, Anytime Virtual Fundraising Walk for Williams

Thu, 06/13/2024 - 12:00 am EDT to Sun, 12/01/2024 - 12:00 am EST

Adventure Seekers Jamboree: Tuesday Shenanigans! Nov 19

Tue, 11/19/2024 - 4:00 pm EST

FSN - Parents/Caregivers of Adults with WS and Anxiety Meeting

Tue, 11/19/2024 - 8:00 pm EST

FSN - Parents/Caregivers of Adults with WS and Challenging Behaviors Meeting

Wed, 11/20/2024 - 8:00 pm EST

FSN - Only Child Family Support Group

Wed, 11/20/2024 - 8:00 pm EST

Adventure Seekers Jamboree: Thursday Hullabaloo! Nov 21

Thu, 11/21/2024 - 7:00 pm EST

FSN - Craft & Convo for Parents/Caregivers

Mon, 11/25/2024 - 8:00 pm EST

FSN - Complex Communicators and Feeding Challenges Group for Parents/Caregivers

Wed, 12/04/2024 - 8:00 pm EST

FSN - December Support Parent/Caregiver Wrap #1

Mon, 12/09/2024 - 8:00 pm EST

Adventure Seekers Jamboree: Tuesday Shenanigans! Dec 17

Tue, 12/17/2024 - 4:00 pm EST

A Family's Personal & Professional Journey with Williams Syndrome

Tue, 12/17/2024 - 6:00 pm EST

Adventure Seekers Jamboree: Thursday Hullabaloo! Dec 19

Thu, 12/19/2024 - 7:00 pm EST

FSN - December Support Parent/Caregiver Wrap #2

Mon, 12/30/2024 - 8:00 pm EST

Cruise 102: Basics and First Timers

Wed, 01/08/2025 - 8:00 pm EST

Cruise 201: Advanced Cruising

Wed, 03/05/2025 - 8:00 pm EST

Cruise 301: Last Looks and Cruising Craziness

Wed, 05/28/2025 - 8:00 pm EDT

The 2025 WSA Adventure Seekers Cruise

Sat, 06/21/2025 - 12:00 am EDT to Sat, 06/28/2025 - 12:00 am EDT

Contact us

243 Broadway Unit 9188
Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Position on Inclusion

The WSA upholds the following positions on inclusion. We believe that: 

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings 
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

Funding priorities

Funding priorities pie chart.

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