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Home » Make Connections » Connect with your Local Community

Arizona

The Williams Syndrome Association is organized into 19 regions across the United States. Arizona is part of the Canyon region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Family Support Volunteer:
Jessica Connor of Gilbert, Arizona
Email
Local Facebook Group:
Aaron Lombard
WSA Board:
Aaron Lombard

Aaron Lombard is a native of New Orleans, LA, and has a 45 year old sister, Courtney, with Williams syndrome. Courtney received a diagnosis around 4 or 5 years old, but with Williams syndrome being in its infancy in regards to recognition as a disability, resources and information were limited so she and her family are only recent members of the Williams Syndrome Association, discovering the WSA in 2020 during the pandemic. Aaron has worked in Optical Sales and Marketing with Oakley for 15 years, managing a territory of private practices throughout the southwest region. He also has extensive experience in Community Relations and Sports Marketing, having worked in minor league baseball for the Houston Astros and Milwaukee Brewers. He is dedicated to making an impact by putting WSA at the forefront of any conversation he has in supporting his sister while spreading Williams syndrome awareness wherever he goes. He is grateful for the information and community the WSA has brought him and his family in this short time and is honored to be an asset to its growth and impact by serving on the Board of Trustees. Aaron has lived in Phoenix, AZ for 20+ years and has 2 children, Laekyn (7) and Declan (5).

Local Facebook Group:

Upcoming Events in AZ

FSN - Parents/Caregivers of Teens & Tweens with WS

Tue, 01/14/2025 - 8:00 pm EST

FSN - Parents/Caregivers of Adults with WS and Anxiety Meeting

Tue, 01/14/2025 - 8:00 pm EST

FSN - Parents/Caregivers of Adults with WS and Challenging Behaviors Meeting

Wed, 01/15/2025 - 8:00 pm EST

FSN - Parents/Caregivers of Individuals with WS-Autism Dual Diagnosis

Thu, 01/16/2025 - 8:00 pm EST

FSN - Grief Support for Parents/Caregivers who have lost someone with WS

Thu, 01/16/2025 - 8:00 pm EST

FSN - Adult Siblings of Individuals with WS

Sun, 01/19/2025 - 8:00 pm EST

FSN - Parents/Caregivers of Children (Under 18) with WS and Anxiety Meeting

Mon, 01/20/2025 - 8:00 pm EST

FSN - Navigating Transition from High School Support

Mon, 01/20/2025 - 8:00 pm EST

Adventure Seekers Jamboree: Tuesday Shenanigans! Jan 21

Tue, 01/21/2025 - 4:00 pm EST

FSN - Only Child Family Support Group

Wed, 01/22/2025 - 8:00 pm EST

Adventure Seekers Jamboree: Thursday Hullabaloo! Jan 23

Thu, 01/23/2025 - 7:00 pm EST

FSN - Craft & Convo for Parents/Caregivers

Mon, 01/27/2025 - 8:00 pm EST

Cruise 201: Advanced Cruising

Wed, 03/12/2025 - 8:00 pm EDT

Cruise 301: Last Looks and Cruising Craziness

Wed, 05/21/2025 - 8:00 pm EDT

The 2025 WSA Adventure Seekers Cruise

Sat, 06/21/2025 - 12:00 am EDT to Sat, 06/28/2025 - 12:00 am EDT

Contact us

243 Broadway Unit 9188
Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Position on Inclusion

The WSA upholds the following positions on inclusion. We believe that: 

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings 
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

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