The Williams Syndrome Association is organized into 19 regions across the United States. Arizona is part of the Canyon region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers.
Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).
Sarah joined the WSA as staff in 2021, but has been involved since her son Matthew was diagnosed in 2003 when he was 13 months old. She has served as one of our regional chair volunteers and as a member of our board of trustees. In addition to her volunteer work with us, Sarah is a Partners in Policymaking graduate, and volunteers as a parent leader for Raising Special Kids. Her past professional positions have included leadership roles in learning and development, communications, sales, and events. She currently resides in Maricopa, AZ (outside Phoenix) with her husband Mike and their four children: daughter Taegon, sons Matthew (WS, born in 2002), Devyn, and Connor. In her spare time, she enjoys music, travel, crafts, and building with Lego.
