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Home » Make connections » Connect with your Local Community

Florida

The Williams Syndrome Association is organized into 19 regions across the United States. Florida is split into two regions. The western panhandle is part of the Gulf Coast region, and the rest of the state is part of the Sunshine region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Blog author, Family Support Specialist:
Nanci Rogers, MSN, CRNA of Delray Beach, Florida
Email
Local Facebook Group:

Clinics in FL

Nemours Children’s Health System Cardiac Center Williams Syndrome Program

13535 Nemours Parkway 4th Fl.
Orlando, Florida 32827

Gul H. Dadlani, MD Chief, Pediatric Cardiology
407-650-7715
Website

Upcoming Events in FL

Virtual Social Gatherings for School Age Children with WS Age 6-12

Sun, 10/17/2021 - 5:00 pm EDT

Virtual Adventure Seekers Gathering for Adults with WS age 18 and up

Tue, 10/19/2021 - 4:00 pm EDT

WS-ASD Dual Diagnosis October Meeting (parents/caregivers of adults with WS)

Wed, 10/20/2021 - 7:00 pm EDT

Virtual Adventure Seekers Gathering for Adults with WS age 18 and up

Thu, 10/21/2021 - 7:00 pm EDT

Virtual Zoom Gathering for Teens with WS - age 13-17

Sun, 11/07/2021 - 5:00 pm EST

Virtual Magic Show Fundraiser to Support the 2022 Convention

Sat, 02/26/2022 - 7:00 pm EST

Contact us

560 Kirts Blvd. Suite 116
Troy, MI 48084-4153

info@williams-syndrome.org

248.244.2229
800.806.1871

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Inclusion statement

The WSA upholds the following positions on inclusion.  We believe that:

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and that individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

Funding priorities

Funding priorities pie chart.

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