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Home » Make Connections » Connect with your Local Community

Kentucky

The Williams Syndrome Association is organized into 19 regions across the United States. Kentucky is part of the Cumberland Gap region. Each region works to provide resource information and social and educational opportunities to its members. Volunteers are standing by in each state within the regions (parents and grandparents who can provide resources and information) to speak with new families or any families needing support. They are joined by many other volunteers who work hard to facilitate gatherings such as picnics, conferences, and fundraisers. 

Below you will find the name(s) and contact email addresses of your state's Family Support Network volunteer(s).

Family Support Specialist:
Evie Edington of Shelbyville, Kentucky
Email

Areas of focus: new diagnosis, children, teens, feeding challenges.

Local Facebook Group:
Family Support Volunteer:
Sheila Levy of Louisville, Kentucky
Email

Area of focus: adults

Local Facebook Group:

Upcoming Events in KY

FSN - Parents/Caregivers of Individuals with WS-Autism Dual Diagnosis

Thu, 04/24/2025 - 8:00 pm EDT

FSN - Grandparent Family Support Group

Thu, 04/24/2025 - 8:00 pm EDT

FSN - Adult Siblings of Individuals with WS

Sun, 04/27/2025 - 8:00 pm EDT

FSN - Craft & Convo for Parents/Caregivers

Mon, 04/28/2025 - 8:00 pm EDT

FSN - Parents/Caregivers of Adults with WS and Anxiety Meeting

Tue, 04/29/2025 - 8:00 pm EDT

FSN - Parents/Caregivers of Children 4 and under with WS

Tue, 05/06/2025 - 8:00 pm EDT

FSN - Grandparent Family Support Group

Thu, 05/08/2025 - 8:00 pm EDT

FSN - Complex Communicators and Feeding Challenges Group for Parents/Caregivers

Mon, 05/12/2025 - 8:00 pm EDT

Wellness Wednesday with Nick LIVE!

Wed, 05/14/2025 - 1:00 pm EDT

FSN - Grief Support for Parents/Caregivers who have lost someone with WS

Thu, 05/15/2025 - 8:00 pm EDT

FSN - Adult Siblings of Individuals with WS

Sun, 05/18/2025 - 8:00 pm EDT

FSN - Parents/Caregivers of Children (Under 18) with WS and Anxiety Meeting

Mon, 05/19/2025 - 8:00 pm EDT

Adventure Seekers Jamboree: Tuesday Shenanigans! May 20

Tue, 05/20/2025 - 4:00 pm EDT

FSN - Navigating Transition from High School Support

Tue, 05/20/2025 - 8:00 pm EDT

FSN - Parents/Caregivers of Adults with WS and Challenging Behaviors Meeting

Wed, 05/21/2025 - 8:00 pm EDT

Cruise 301: Last Looks and Cruising Craziness

Wed, 05/21/2025 - 8:00 pm EDT

Adventure Seekers Jamboree: Thursday Hullabaloo! May 22

Thu, 05/22/2025 - 7:00 pm EDT

FSN - Parents/Caregivers of Individuals with WS-Autism Dual Diagnosis

Thu, 05/22/2025 - 8:00 pm EDT

FSN - Parents/Caregivers of Adults with WS and Anxiety Meeting

Tue, 05/27/2025 - 8:00 pm EDT

FSN - Craft & Convo for Parents/Caregivers

Thu, 05/29/2025 - 8:00 pm EDT

Adventure Seekers Jamboree: Thursday Hullabaloo! June 12

Thu, 06/12/2025 - 7:00 pm EDT

Adventure Seekers Jamboree: Tuesday Shenanigans! June 17!

Tue, 06/17/2025 - 4:00 pm EDT

The 2025 WSA Adventure Seekers Cruise

Sat, 06/21/2025 - 12:00 am EDT to Sat, 06/28/2025 - 12:00 am EDT

Adventure Seekers Jamboree: Tuesday Shenanigans! July 15

Tue, 07/15/2025 - 4:00 pm EDT

Adventure Seekers Jamboree: Thursday Hullabaloo! July 17

Thu, 07/17/2025 - 7:00 pm EDT

Adventure Seekers Jamboree: Tuesday Shenanigans! Aug 19

Tue, 08/19/2025 - 4:00 pm EDT

Adventure Seekers Jamboree: Thursday Hullabaloo! August 21

Thu, 08/21/2025 - 7:00 pm EDT

Adventure Seekers Jamboree: Tuesday Shenanigans! Sept 16

Tue, 09/16/2025 - 4:00 pm EDT

Adventure Seekers Jamboree: Thursday Hullabaloo! Sept 18

Thu, 09/18/2025 - 7:00 pm EDT

Adventure Seekers Jamboree: Tuesday Shenanigans! Oct 21

Tue, 10/21/2025 - 4:00 pm EDT

Adventure Seekers Jamboree: Thursday Hullabaloo! Oct 23

Thu, 10/23/2025 - 7:00 pm EDT

Adventure Seekers Jamboree: Tuesday Shenanigans! Nov 18

Tue, 11/18/2025 - 4:00 pm EST

Adventure Seekers Jamboree: Thursday Hullabaloo! Nov 20

Thu, 11/20/2025 - 7:00 pm EST

Adventure Seekers Jamboree: Tuesday Shenanigans! Dec 16

Tue, 12/16/2025 - 4:00 pm EST

Adventure Seekers Jamboree: Thursday Hullabaloo! Dec 18

Thu, 12/18/2025 - 7:00 pm EST

Dream Team Saturdays! (For Adventure Seekers 38+)

Sat, 12/27/2025 - 2:00 pm EST

Contact us

243 Broadway Unit 9188
Newark, NJ 07104

info@williams-syndrome.org

248.244.2229
800.806.1871
248.244.2230 fax

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Position on Inclusion

The WSA upholds the following positions on inclusion. We believe that: 

  • everyone benefits when individuals with WS are meaningfully included in educational, work, and community settings 
  • individuals with WS should receive all necessary supports and services to fully participate in their family lives, communities, and society as a whole
  • high expectations should be the norm, and individuals with WS and their families should decide how they best learn, work, and enjoy social settings
  • “inclusion” is not one-size-fits-all, and will look different for each family based on each individual’s desires and needs
  • inclusion creates a sense of belonging in society, meaningful relationships, and opportunities to achieve dreams

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